Care homes

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Research

A Road Less Rocky Supporting Carers of People with Dementia

A Road Less Rocky is a report from Carers Trust that found that carers of people with dementia are not getting the support and advice they often desperately need.
Area of Care: 
Mental HealthDay centreRehab CentreHospitalCare homesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesInformation and adviceCommissioning for carersSocial careCommissioning
I work with: 
Adult carersYoung adult carers
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 14:00
Body: 

The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:

  1. When dementia is diagnosed.
  2. When the carer takes on an 'active' caring role.
  3. When the capacity of the person with dementia declines.
  4. When the carer needs emotional support and/or a break from caring.
  5. When the person with dementia loses their mobility.
  6. When the person with dementia has other health problems.
  7. When the carer has to cope with behavioural problems.
  8. When the carer's own circumstances change.
  9. When the person with dementia becomes incontinent.
  10. When decisions about residential care and end of life care have to be made

We have designed a toolkit around these ten points,the issues carers face at these points and what will make a positive difference. It has been produced to sit alongside A Road Less Rocky and gives guidance to professionals who come in contact with carers. The toolkit is useful for anyone who works with or treats patients with dementia and is therefore likely to come into contact with carers. 

A Road Less Rocky – Supporting Carers of People with Dementia complements the Triangle of Care Carers included: A Guide to best Practice for Dementia Care. This document describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia, identifying six key standards required to achieve better collaboration and partnership with carers.

Although the terminology and legislation referred to in this toolkit applies to England the standards and rationale are applicable across the whole of the UK.

Further information

Find further information and download the full report A Road Less Rocky – Supporting Carers of People with Dementia (PDF, 962KB).

Download the toolkit PDF iconA Road Less Rocky: Making the Road Less Rocky for Carers, A Guide on how to Support Carers of People with dementia

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Guidance

Triangle of Care for Dementia

The Triangle of Care for Dementia was developed in partnership with the Royal College of Nursing and in consultation with carers, people with dementia and professionals. It is based on the original Triangle of Care and is aimed at acute care hospitals.
Area of Care: 
Mental HealthSpecialist servicesDay centreRehab CentreHospitalCare homesSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careHospitalsMental health careHealth and wellbeingCarers servicesCommissioning for carersCommissioning
I work with: 
Adult carers
Caring for: 
AdultsOlder adults
Location: 
England
Date Revised: 
Tuesday, June 9, 2015 - 09:30
Body: 

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care

In 2013 Carers Trust worked with the Royal College of Nursing (RCN) to adapt the Triangle of Care to meet the needs of carers of people with dementia when the person they cared for was adapted to a general hospital. A stakeholder day was held where carers, people with dementia and professionals were consulted and provided feedback on the Triangle of Care. 

Carers Trust and the RCN worked together in 2016 to update the guide.

The new guide and self assessment tool were launched in November 2016, this is specifically aimed at acute hospital wards and services where a person with dementia may be admitted but their dementia is not the reason for their admission.

The guide is to enable professionals to look at how they can identify and support carers ensuring that the person with dementia is included and receives the best care outcomes as well as positive outcomes for the carer.

PDF iconThe Triangle of Care Carers Included a Guide to Best Practice in Dementia Care.pdf

FileTriangle of Care for Dementia Self-Assessment Tool (Word Version)

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care in Scotland

To reflect the Scottish context, the Triangle of Care has been adapted to suit the Scottish legislation, initiatives and policies around dementia. The Scottish version has been a collaborative effort between Carers Trust Scotland, Royal College of Nursing Scotland, NHS Greater Glasgow & Clyde, University of
Stirling Dementia Services Research and Dementia Carers Voices.

 PDF iconThe Triangle of Care Carers Included a Guide to Best Practice for Dementia Care in Scotland.pdf.

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care, Wales Edition

In Wales, the Triangle of Care has been adapted to reflect Welsh legislation, good practice examples and policies around dementia in secondary care. The Wales edition has been funded by the Royal College of Nursing and adapted for use in Wales by Carers Trust Wales.

 

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