Mental Health

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Good Practice

Good practice guide for supporting carers in Wales

This good practice guide, funded by Welsh Government, is designed to be used by regional partnership boards, local authorities, local health boards and third sector organisations in Wales to support the identification and commissioning of good services for unpaid carers.
Area of Care: 
Mental Healthyoung carersSpecialist servicesDay centreHospitalPrimary CareSecondary CareDementia care
Outcomes: 
PreventionSchoolsWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carersCarers in employment
I work in: 
Health careSchoolsCarers servicesSocial careEducationCommissioning
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Wales
Date Revised: 
Wednesday, June 5, 2019 - 13:00
Body: 
To develop this guide, Carers Trust Wales has undertaken substantial desk research including analysis of academic and other notable publications. Additionally, we have undertaken active research, including in-depth interviews with carers services across Wales, to develop a deeper understanding of what is working well. 
 
Through this approach we have identified evidence-based criteria which can be used to understand the quality and appropriateness of carers services. These criteria recognise that regardless of the service model used, it is essential that all services commissioned to support carers: 
  • Meet obligations under the Social Services and Wellbeing (Wales) Act 2014 
  • Deliver the Wellbeing Objectives under the Wellbeing of Future Generations (Wales) Act 2015 
  • Deliver against the Ministerial priorities for carers 
  • Adequately reflect carers’ views, experiences and preferences. 

Download English language version PDF iconGood Practice Approaches to Supporting Carers in Wales 

Download Welsh language version PDF iconDulliau arfer da wrth gefnogi gofalwyr yng Nghymru

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PDF icon Good Practice Guide to Supporting Carers in WalesPDF icon Dulliau arfer da wrth gefnogi gofalwyr yng Nghymru
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Toolkit

Young Carers In Schools - A Toolkit for Local Authorities

Legislation into Practice: Making the Children and Families Act 2014 and the Care Act 2014 a Reality for Young Carers
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary Care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Information and adviceCommissioning for carersCommissioning for young carersSocial careEducationCommissioning
I work with: 
Young carersParent carersSibling carersFamilies
Caring for: 
Young peopleChildren
Location: 
England
Date Revised: 
Tuesday, November 13, 2018 - 15:45
Body: 

A resource for local  authorities working with schools to identify and support young carers. 

This resource supports the case for the effective and economic ways that local young carers services offer both preventative and responsive support for young carers and their families. 

It sets out the case to include the Young Carers in Schools Programme in all aspects of educational support and how this would support local authorities to ensure they fulfil their statutory duties as set out in the Children and Families Act 2014 and the Care Act 2014. 

Most importantly it will ensure positive outcomes for young carers and their families. 

PDF iconLegislation into practice toolkit pdf

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PDF icon Legislation into Practice
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Good Practice

Supporting Students with Caring Responsibilities: A Resource for Further Education Providers to Help Young Adult Carers Succeed In Further Education in Wales

A Wales-specific, user-friendly resource, this toolkit was developed in partnership with Learning and Work Institute to increase awareness of student carers and their specific needs, promote existing good practice from colleges and carers services and offering expert recommendations.
Area of Care: 
Mental HealthSpecial education needs
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCarers involvementInformation and adviceCommissioning for young carersEducation
I work with: 
Young adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Wales
Date Revised: 
Tuesday, October 9, 2018 - 10:45
Body: 

Student Carers in Further Education

In 2015 Carers Trust worked with the National Institute for Adults Continuing Education (NIACE) to develop a practical resource for colleges. In 2017 Carers Trust Wales and Learning and Work Institute worked together to develop Supporting Students with Caring Responsibilities: A Resource for Further Education Providers to Help Young Adult Carers Succeed in Further Education in Wales, drawing on good practice from colleges and carers centres across Wales. 

This interactive resource has been designed to generate momentum for identifying and supporting student carers within colleges. We hope that it will inspire and assist all colleges to build on good practice to develop their own approaches to identifying and supporting this student group. In doing so, this will ensure that students who are caring for others - students whom, in many instances, will have overcome very difficult circumstances and have aquired valuable transferable skills along the way - are able to reach their potential and successfully achieve their educational aims. 

Feedback

Carers Trust Wales will be contacting colleges across Wales in September 2018 for feedback on the implementation on the toolkit.

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PDF icon Supporting Students with Caring Responsibilities: A Good Practice GuidePDF icon Cefnogi Myfyrwyr a chanddynt Gyfrifoldebau Gofal: Canllaw Arfer Da
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Research

A Road Less Rocky Supporting Carers of People with Dementia

A Road Less Rocky is a report from Carers Trust that found that carers of people with dementia are not getting the support and advice they often desperately need.
Area of Care: 
Mental HealthDay centreRehab CentreHospitalCare homesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesInformation and adviceCommissioning for carersSocial careCommissioning
I work with: 
Adult carersYoung adult carers
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 14:00
Body: 

The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:

  1. When dementia is diagnosed.
  2. When the carer takes on an 'active' caring role.
  3. When the capacity of the person with dementia declines.
  4. When the carer needs emotional support and/or a break from caring.
  5. When the person with dementia loses their mobility.
  6. When the person with dementia has other health problems.
  7. When the carer has to cope with behavioural problems.
  8. When the carer's own circumstances change.
  9. When the person with dementia becomes incontinent.
  10. When decisions about residential care and end of life care have to be made

We have designed a toolkit around these ten points,the issues carers face at these points and what will make a positive difference. It has been produced to sit alongside A Road Less Rocky and gives guidance to professionals who come in contact with carers. The toolkit is useful for anyone who works with or treats patients with dementia and is therefore likely to come into contact with carers. 

A Road Less Rocky – Supporting Carers of People with Dementia complements the Triangle of Care Carers included: A Guide to best Practice for Dementia Care. This document describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia, identifying six key standards required to achieve better collaboration and partnership with carers.

Although the terminology and legislation referred to in this toolkit applies to England the standards and rationale are applicable across the whole of the UK.

Further information

Find further information and download the full report A Road Less Rocky – Supporting Carers of People with Dementia (PDF, 962KB).

Download the toolkit 

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Research

Retirement on Hold

Our Retirement on Hold report highlighted some of the challenges faced by older carers and made recommendations to improve their experience now and in the future. Thank you to all the carers and Network Partners who contributed.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist services
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 13:45
Body: 

Key findings from our report

  • Care coordination – carers said they were spending too much time, and became stressed and anxious when trying to organise care and support for the person with care needs. 
  • Carers are caring for someone else when they have their own age-related health condition.
  • The pressures around carers feeling they had a 'duty to care' – the Care Act recognises that caring should be a choice.
  • Lack of appropriate replacement care to enable carers to take a break. 

Our key recommendations

  • Access to a 'care coordinator' – many older carers felt this would help them navigate the health and care system. It is recognised that with limited resources this may not be feasible, however, earlier referral to a carer organisation may help improve the situation for carers. 
  • Appropriate and timely access to information and advice about support available locally, nationally and UK wide. This information would need to recognise that not all older carers are able to access the internet.
  • Improved access to appropriate and good quality replacement care.
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Good Practice

Older Carers Toolkit

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist servicesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, April 27, 2018 - 13:15
Body: 

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.

It shines a spotlight on particular issues most likely to impact on older carers. This can help inform commissioning to properly and most cost-effectively support them. It will also help commissioners fulfil duties to prevent, reduce and delay needs and to support older carers under the Care Act 2014.

Further information

Download the toolkit PDF iconCaring About Older Carers (PDF 307KB)

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Educational

About Time Grant Evaluations

Following the successful delivery of two About Time Grant programmes, Time for Change and Take Action and Support which addressed issues that can lead to young adult carers becoming disengaged from society, independent evaluations of the two programmes have been produced.
Area of Care: 
Mental HealthPhysical illness
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carersCarers in employment
I work in: 
Primary careMental health careHealth and wellbeingCarers involvementCarers breaksInformation and adviceCommissioning for carersEmploymentSocial careEducationCommissioning
I work with: 
Young adult carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Monday, February 12, 2018 - 10:00
Body: 

Key points: 

The objectives of the evaluations were to:
  • Provide an overall evaluation of all data to assess the progress of funded projects against the aims and objectives of the About Time grant programmes and of the wider About Time programme.
  • Conduct a qualitative study with funded projects to identify effective strategies and approaches for supporting and enabling young adult carers.
  • Provide a focused evaluation of data derived from outcomes measurement tools designed to measure the extent of care undertaken, the positive and negative impacts of caring for young adult carers and changes in their lives because of taking part in the funded intervention.
  • Evaluate the impacts of programme delivery and Carers Trust grant making processes on funded organisations.

About Time evaluations

The evaluations of the Time for Change and Take Action and Support grant programmes were structured in three phases and each had its own evaluation report with an overview of the whole programme also produced.

Phase one: February–October 2015

 

Phase two: November 2015–November 2016

PDF iconAbout Time Grant Programmes Evaluation Report Phase 2 November 2015 to November 2016 Executive Summary PDF (177 KB)

PDF iconAbout Time Grant Programmes Evaluation Report Phase 2 November 2015  to November 2016 PDF (323 KB)

Phase three: December 2016–October 2017

PDF icon About Time Grant Programme Evaluation Report Phase 3 December 2016 to October 2017 Executive Summary PDF (251 KB)

PDF icon About Time Grant Programme Evaluation Report Phase 3 December 2016 to October 2017 PDF (483 KB)

Overview Report

PDF icon About Time Grant Programme Evaluation Overview Report PDF (519 KB)

Key achievements and learning from the programmes include:

  • Around 7,200 young adult carers have benefited from 114 projects delivered by Carers Trust Network Partners, exceeding the original target of 6,200 young adult carers.
  • Programmes provided support to significant numbers of young adult carers for the first time, with over half of the young people participating being new to Carers Trust Network Partners.
  • Programmes developed a flexible response to the needs of young adult carers, including individual support, group activities and access to small grants for individuals, alongside the development of partnerships.
  • The programme design involved young adult carers and Network Partners, ensuring programmes reflected specific needs across UK.
  • Projects have been successful in reaching a representative group of young adult carers and there was a good geographic spread of projects across the UK.
  • Carers Trust has enabled Network Partners to deliver effective projects by being flexible about delivery approaches and providing good quality support, information and training.
  • The Carers Trust Network has a unique role in supporting the needs of young adult carers.
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Toolkit

5. Tools to support services with limited capacity to signpost schools to Young Carers in Schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for young carers services who have limited capacity to signpost schools to Young Carers in Schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 16:15
Body: 

This is section 5 of the tools in Supporting Young Carers in Schools: A Toolkit for Young Carers Services

For tools to support your work to signpost schools to the Young Carers in School programme in your local area, please see below: 

FileTool 1: Template text for use on websites (Word 948KB)

PDF iconTool 2: Young Carers in Schools impact inographic (PDF 162KB)

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PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

4. Tools to support services to gather impact data from schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for services who want to gather impact data from schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 16:00
Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

3. Tools to support services to build and maintain engagement with schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for schools who want to build and maintain engagement with schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 15:45
Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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