Specialist services

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Good Practice

Supporting carers of people with dementia in black, Asian and minority ethnic communities

A good practice example of working with carers of people with dementia from diverse communities by the Dementia Information and Support for Carers (DISC) service hosted by Sandwell Crossroads Birmingham
Area of Care: 
Mental HealthPhysical illnessSpecial education needsSpecialist servicesDay centreRehab CentreHospitalCare homesDementia care
Outcomes: 
Carer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesCarers involvementCarers breaksInformation and adviceCommissioning for carersCommissioning
I work with: 
Adult carersFamilies
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Monday, April 30, 2018 - 13:45
Body: 

DISC Dementia information and support for carers

The Disc Service was launched 11 years ago, it is hosted by Sandwell Crossroads and funded by Sandwell and West Birmingham, Cross City, South Central CCG’s, and Birmingham City Council through the Birmingham Bettercare Fund

The service originally operated in West Birmingham, but had funding extended to cover the entire Birmingham City Council area.

The service is focused on supporting carers from the diverse communities in the Birmingham area. The DISC service prides itself on being proactive in recruiting staff from local black, Asian and minority ethnic (BAME) communities who have both the language skills and understand the cultural sensitivities.

The service supports over 400 carers and offers Iiformation, advocacy and support for carers, though one-to-one contact and successful weekly information and support groups.

It also offers a signposting and referral service into other local statutory and voluntary sector services.

Examples of the type of help and support carers have receive:

  • Accessing respite
  • Liaising with district nurses, occupational therapists and social workers.
  • Continence advice and support.
  • Advice in managing changing and unusual behaviours.
  • Finding the right care such as day centres, care homes and care agencies.
  • Talking to the wider family.
  • Advice on benefits and carers' rights.
  • Information on the Mental Capacity Act.
  • Information on lasting power of attorney

DISC's strengths

  • Building relationships with carers over a long period of time.
  • Stepping in to offer support before a crisis develops.
  • Bridging the gap between clinical diagnosis and families coping alone.
  • Making carers feel welcome – 14 of them formally volunteer in supporting other carers.
  • Being led by carers, listening to carers and developing services to meet need.
  • Feeling passionate about the service.

Further information

For more information on the service contact Jo.Moon@sandwellcrossroads.org or visit the Sandwell Crossroads website.

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Research

Retirement on Hold

Our Retirement on Hold report highlights some of the challenges faced by older carers and makes recommendations to improve their experience now and in the future. Thank you to all the carers and Network Partners who contributed.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist services
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 13:45
Body: 

Key findings from our report

  • Care coordination – carers said they were spending too much time, and became stressed and anxious when trying to organise care and support for the person with care needs. 
  • Carers are caring for someone else when they have their own age-related health condition.
  • The pressures around carers feeling they had a 'duty to care' – the Care Act recognises that caring should be a choice.
  • Lack of appropriate replacement care to enable carers to take a break. 

Our key recommendations

  • Access to a 'care coordinator' – many older carers felt this would help them navigate the health and care system. It is recognised that with limited resources this may not be feasible, however, earlier referral to a carer organisation may help improve the situation for carers. 
  • Appropriate and timely access to information and advice about support available locally, nationally and UK wide. This information would need to recognise that not all older carers are able to access the internet.
  • Improved access to appropriate and good quality replacement care.

Further information

You will find our more information and our Retirement on Hold report on Carers.org.

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Good Practice

Older Carers Toolkit

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist servicesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, April 27, 2018 - 13:15
Body: 

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.

It shines a spotlight on particular issues most likely to impact on older carers. This can help inform commissioning to properly and most cost-effectively support them. It will also help commissioners fulfil duties to prevent, reduce and delay needs and to support older carers under the Care Act 2014.

Further information

Download the toolkit PDF iconCaring About Older Carers (PDF 307KB)

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How-to Guide

Triangle of Care Toolkit - A Resource for Mental Health Service Providers

This resource is designed for services implementing the Triangle of Care, it is based on what has worked and what has prevented successful implementation in other organisations. It includes guidance, tips and good practice to guide professionals and carers.
Area of Care: 
Mental HealthAlcohol MisuseSubstance MisuseSpecialist servicesSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health careHospitalsMental health careCarers servicesCommissioning for carersCommissioning for young carers
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Monday, November 9, 2015 - 15:30
Body: 

Introduction

The Triangle of Care was launched in 2010 and was developed by carers who were supporting someone who regularly needed acute inpatient mental health services. It identified six key standards that if in place would mean that the carer would be better involved and supported by mental health services.

Since the launch, Carers Trust has led on the programme in England developing the original guide so that it can be implemented across all mental health services including specialist, forensic, children’s, older people’s and community.

In 2013 the Triangle of Care membership scheme was launched to enable mental health providers to receive formal recognition of their commitment to cultural change and carer involvement. Since its launch, 31 NHS trusts have joined the scheme and their experience, knowledge, good practice and pitfalls have been identified to help develop a toolkit for implementation of the Triangle of Care.

You can download the full toolkit here, or review the appropriate section online: PDF iconTriangle of Care Toolkit

The Triangle of Care Toolkit – A Resource for Mental Health Service Providers

The experiences of the 31 trusts who have joined the Triangle of Care membership scheme between 2013 and April 2015 have been extensive. Carers Trust has been able to identify good practice where it has been implemented which has ensured a more successful implementation of the Triangle of Care. These experiences have been collated to develop a toolkit. This toolkit aims to support trusts who are at the beginning of their Triangle of Care journey, those who are yet to begin and those who are already well progressed but want to learn from their peers and ensure a legacy of cultural change.

The toolkit focuses on the different elements that trusts should consider when implementing the Triangle of Care across their services and more information on each area can be found in the toolkit:

  • Strategic buy-in and support
  • Commissioning and reporting levers including Care Act 2014
  • Staff promotion and buy-in
  • Carer partners and Service user partners
  • Carer champions
  • What good looks like and celebrating good practice
  • A willingness to be honest and encouraging the value of honesty and frequently asked questions

These elements have been identified as important to successful implementation if they are in place. While not all the elements are in place in all trusts many trusts do have a majority in place and this has helped their journey be more successful.

Downloads: 
PDF icon The Triangle of Care Toolkit – A Resource for Mental Health Service Providers
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Guidance

Triangle of Care for Dementia

The Triangle of Care for Dementia was developed in partnership with the Royal College of Nursing and in consultation with carers, people with dementia and professionals. It is based on the original Triangle of Care and is aimed at acute care hospitals.
Area of Care: 
Mental HealthSpecialist servicesDay centreRehab CentreHospitalCare homesSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careHospitalsMental health careHealth and wellbeingCarers servicesCommissioning for carersCommissioning
I work with: 
Adult carers
Caring for: 
AdultsOlder adults
Location: 
England
Date Revised: 
Tuesday, June 9, 2015 - 09:30
Body: 

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care

In 2013 Carers Trust worked with the Royal College of Nursing (RCN) to adapt the Triangle of Care to meet the needs of carers of people with dementia when the person they cared for was adapted to a general hospital. A stakeholder day was held where carers, people with dementia and professionals were consulted and provided feedback on the Triangle of Care. 

Carers Trust and the RCN worked together in 2016 to update the guide.

The new guide and self assessment tool were launched in November 2016, this is specifically aimed at acute hospital wards and services where a person with dementia may be admitted but their dementia is not the reason for their admission.

The guide is to enable professionals to look at how they can identify and support carers ensuring that the person with dementia is included and receives the best care outcomes as well as positive outcomes for the carer.

PDF iconThe Triangle of Care Carers Included a Guide to Best Practice in Dementia Care.pdf

FileTriangle of Care for Dementia Self-Assessment Tool (Word Version)

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care in Scotland

To reflect the Scottish context, the Triangle of Care has been adapted to suit the Scottish legislation, initiatives and policies around dementia. The Scottish version has been a collaborative effort between Carers Trust Scotland, Royal College of Nursing Scotland, NHS Greater Glasgow & Clyde, University of
Stirling Dementia Services Research and Dementia Carers Voices.

 PDF iconThe Triangle of Care Carers Included a Guide to Best Practice for Dementia Care in Scotland.pdf.

The Triangle of Care Carers Included: a Guide to Best Practice for Dementia Care, Wales Edition

In Wales, the Triangle of Care has been adapted to reflect Welsh legislation, good practice examples and policies around dementia in secondary care. The Wales edition has been funded by the Royal Collage of Nursing and adapted for use in Wales by Carers Trust Wales.

 

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Guidance

Support for young carers and their families

Targeted support for young carers and families formed part of the vision of the National Strategy for Carers. The value of dedicated support for young carers cannot be underestimated.
Area of Care: 
Specialist services
Outcomes: 
PreventionWellbeingIntegrationIdentifying carers
I work in: 
Health and wellbeingCarers servicesSocial careEducationCommissioning
I work with: 
Young carersFamilies
Location: 
Whole UK
Date Revised: 
Tuesday, November 25, 2014 - 16:15
Body: 

Young carers and families have consistently stated how they value targeted support which recognises and understands their distinct needs.

Not all young carers will wish to access targeted support and for many mainstream or universal activities will meet their needs. Strong links between both targeted and universal support services will mean that young carers have support that meets their needs and circumstances and ensure that any issues are identified early. 

Young carers services - what do they offer?

Young carer’s services deliver a wide range of interventions in their local area including the provision of clubs, respite activities and one-to-one support. Some services will also offer befriending or mentoring schemes, skills programmes, smaller groups where young carers with similar caring roles can support each other and specific support programmes.

Providing transport to activities is a big part of a young carers’ service as few families have transport of their own.

Online support for young carers

Online support is a great alternative to a physical support group which can particularly meet the needs of hidden young carers who are unable to access local services or who do not wish to do so.

It may not provide all the benefits of a physical support group where young carers can meet peers in similar circumstances, however for young adult carers particularly and young carers from rural locations, it can reduce the isolation experienced by young people, provides information and connects them with others and other services when appropriate.

Supporting the health and wellbeing of young carers 

Dedicated support for young carers can help to protect the health and wellbeing of young carers. Young carers often say that having someone to talk to, to share their concerns with such as a young carers’ support worker, is hugely important.

Young carers also often say that peer support online or within a young carers’ service for example, where they can relax, be themselves and take part in activities is vital. For others, dedicated emotional support from specialist services may be appropriate.

Respite activities and sports are also important for young carers. Providing opportunities where young carers can simply be young people and have fun, will help reduce social isolation and protect their health and wellbeing.

Find out more about protecting the health and wellbeing of young carers.

Further information

Support for young carers and their families – supporting the family

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Guidance

Support for young carers and their families – supporting the family

A whole family approach to supporting young carers and their families can significantly help to reduce inappropriate caring roles.
Area of Care: 
Specialist services
Outcomes: 
PreventionWellbeingIntegrationIdentifying carers
I work in: 
Health and wellbeingCarers servicesSocial careEducationCommissioning
I work with: 
Young carersFamilies
Location: 
Whole UK
Date Revised: 
Tuesday, November 25, 2014 - 10:15
Body: 

A whole family approach to supporting young carers and their families can significantly help to reduce inappropriate caring roles.

Whole family working involves understanding and addressing the needs of the family as a whole. This means considering the impact of an individual’s additional needs on the rest of their family and addressing a child’s needs within the context of their family, instead of in isolation.

Respite for family members

Both young carers and their families value the opportunity of trips and activities for the whole family. These provide shared family experiences and support and strengthen family relationships.

A range of family support for young carers of substance misusing adults

The PDF iconproject supports families affected by substance abuse by providing one-to-one support to young carers and parents and a range of group activities for both adults and children.

Partners in identification and support of young carers

Supporting young carers in education 

Schools are vital and ideally positioned to play a collaborative role in identifying young carers and initiating support for young carers and their families. Children are often caring for relatives without their teachers’ knowledge, yet if unidentified and unsupported, their caring roles can seriously affect their educational outcomes and aspirations.

Supporting young carers in youth services 

Mainstream youth services can play an important role in supporting young carers. Not all young carers will wish to access a dedicated young carers service, preferring mainstream universal services instead. 

For some young carers mainstream activities best meet their needs and reduce the social isolation of a caring role. Accreditation schemes often run by youth services are a good way of supporting some young carers at risk of becoming NEET.

Supporting young adult carers into further education and employment 

It is common for young adult carers to face barriers in relation to further learning and employment. Targeted support for young adult carers to address these specific barriers is therefore important to prevent them from becoming NEET and to help them transition smoothly and reach their full potential.

Practice examples

Protecting the Health and Wellbeing of Young Carers – examples of practice

Downloads: 
PDF icon Family support for young carers of substance misusing adults
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