Adult carers

Protected: 
No
Type of Content: 
Good Practice

Good practice guide for supporting carers in Wales

This good practice guide, funded by Welsh Government, is designed to be used by regional partnership boards, local authorities, local health boards and third sector organisations in Wales to support the identification and commissioning of good services for unpaid carers.
Area of Care: 
Mental Healthyoung carersSpecialist servicesDay centreHospitalPrimary CareSecondary CareDementia care
Outcomes: 
PreventionSchoolsWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carersCarers in employment
I work in: 
Health careSchoolsCarers servicesSocial careEducationCommissioning
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Wales
Date Revised: 
Wednesday, June 5, 2019 - 13:00
Body: 
To develop this guide, Carers Trust Wales has undertaken substantial desk research including analysis of academic and other notable publications. Additionally, we have undertaken active research, including in-depth interviews with carers services across Wales, to develop a deeper understanding of what is working well. 
 
Through this approach we have identified evidence-based criteria which can be used to understand the quality and appropriateness of carers services. These criteria recognise that regardless of the service model used, it is essential that all services commissioned to support carers: 
  • Meet obligations under the Social Services and Wellbeing (Wales) Act 2014 
  • Deliver the Wellbeing Objectives under the Wellbeing of Future Generations (Wales) Act 2015 
  • Deliver against the Ministerial priorities for carers 
  • Adequately reflect carers’ views, experiences and preferences. 

Download English language version PDF iconGood Practice Approaches to Supporting Carers in Wales 

Download Welsh language version PDF iconDulliau arfer da wrth gefnogi gofalwyr yng Nghymru

Downloads: 
PDF icon Good Practice Guide to Supporting Carers in WalesPDF icon Dulliau arfer da wrth gefnogi gofalwyr yng Nghymru
Share it: 
Protected: 
No
Type of Content: 
Toolkit

Triangle of Care in Wales

Carers Trust Wales and the Royal College of Nursing are delighted to have been able to explore an adaptation of the Triangle of Care to meet the needs of carers of people with dementia in acute hospitals in Wales.
Area of Care: 
Secondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health care
I work with: 
Adult carersYoung adult carersYoung carersFamilies
Caring for: 
AdultsOlder adults
Location: 
Wales
Date Revised: 
Wednesday, May 9, 2018 - 13:15
Body: 

The Triangle of Care, Carers Included: A Guide to Best Practice in Dementia Care, Wales Edition

Carers Trust Wales has been extremely keen to build on the success of the Triangle of Care model in England and Scotland  by advocating and supporting the implementation of the Triangle of Care standards for carers accessing services in local health boards across Wales.

Funded through the RCN Foundation, the recent development of a Triangle of Care for dementia Wales edition has been a collaborative effort between the Royal College of Nursing and Carers Trust Wales. It has been developed from the original Triangle of Care for dementia, which was co-designed with carers, people with dementia and practitioners, with the support of Uniting Carers and Dementia UK. 

Overview

According to the National Assembly for Wales Research Service, dementia is the top health concern in Wales and yet Wales has the lowest rate of diagnosis across all UK nations at just 43%. There are an estimated 45,000 people in Wales currently living with dementia and this figure is predicted to rise steadily over the next decade bringing with it dramatic financial and human impact. The cost to the Welsh economy is an estimated £1.4bn a year which includes costs to the NHS and social services, although research shows that people with dementia, carers and their families currently bear around two-thirds of the costs themselves (National Assembly for Wales Research Service, 2016).

In Wales, 50% of health boards have shown an active interest in implementing a Triangle of Care model and support is growing within other health boards throughout Wales. We hope the new Welsh edition for best practice in dementia care can lead to consistent carer involvement and support across all health and social care services irrespective of where and when a person is being treated. The partnership between Carers Trust and the Royal College of Nursing has been incredibly positive and we hope that this can be replicated across health services with nurses and carers working as partners.

Further information

For further information on the Triangle of Care in Wales contact Carers Trust Wales.

 

Downloads: 
PDF icon Triangle of Carer Carers Included: A Guide to Best Practice for Dementia Care, Wales editionPDF icon Triongl Gofal Cynnwys Gofalwyr: Canllaw i Arfer Gorau ar gyfer Gofal Dementia, Argraffiad Cymru
Share it: 
Protected: 
No
Type of Content: 
Educational

Student Carers in Higher Education

This resource will enable universities and services supporting young adult carers to gain a greater understanding of the challenges that this group of students face and how they can be better supported to access and succeed in higher education.
Outcomes: 
Carer awarenessIdentifying carers
I work in: 
Education
I work with: 
Adult carersYoung adult carers
Location: 
Whole UK
Date Revised: 
Monday, April 30, 2018 - 16:15
Body: 

For a young person who has caring responsibilities, trying to transition to, through and beyond university can be extremely challenging and for some a barrier.

Carers Trust, with the support of The National Union of Students and the National Network of Universities Supporting Young Adult Carers, has published a new guide:

This resource will enable universities and services supporting young adult carers, to gain a greater understanding of the challenges that this group of students face and how they can be better supported to access and succeed in higher education.

The resource: 

  • Draws together some of the good practice universities have already begun to develop.
  • Makes recommendations for how universities can support students across the student life cycle.
Share it: 
Protected: 
No
Type of Content: 
Educational

Student Carers in Further Education

Carers Trust in partnership with NIACE has published a new guide to support students with caring responsibilities in further education colleges.
Outcomes: 
Carer awarenessIdentifying carers
I work in: 
Education
I work with: 
Adult carersYoung adult carers
Location: 
Whole UK
Date Revised: 
Monday, April 30, 2018 - 15:30
Body: 

This new resource will enable further education colleges to gain a greater understanding of the challenges that this group of students face and how they can be better supported to remain and succeed in further education.

PDF iconSupporting Students with Caring Responsibilities: A Resource for Colleges and Services to Help Young Adult Carers Succeed in Further Education

“If I was told that I couldn’t have my phone on I would just leave college – my mum needs to be able to contact me quickly in an emergency.”
Young adult carer (taken from the Top tips for colleges and college staff supporting student carers section of the guide)

Who is the resource for?

This practical resource is designed for use by managers and staff working in further education colleges and carers services supporting young and young adult carers.

The resource: 

  • Increases awareness and understanding of young adult carers and their specific needs.
  • Outlines who young adult carers are, the challenges they face and how their caring roles can impact on their education.
  • Draws together some of the good practice that is already being developed in some colleges.
  • Makes recommendations for how student carers can be supported to sustain their participation in learning, achieve their potential and succeed.
Share it: 
Protected: 
No
Type of Content: 
Toolkit

Young Carers Pharmacy project

Pharmacies are visited by about 1.6 million people every day in England so they are ideally positioned to identify carers of all all ages including young carers. They can therefore play a key role in the early initiation of assessment and support which can be life changing.
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary carePharmacy ServicesCarers servicesSocial care
I work with: 
Adult carersYoung adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 15:30
Body: 

The Engaging with Pharmacies toolkit was aimed at young carer services to support them to work collaboratively with pharmacies. It drew on the Young Carers Pharmacy Project that took place between 2014 and 2016. This was delivered by Carers Trust Network Partner Salford Carers Centre as one of Carers Trust’s Innovation Generation projects.

Further information

Share it: 
Protected: 
No
Type of Content: 
Research

A Road Less Rocky Supporting Carers of People with Dementia

A Road Less Rocky is a report from Carers Trust that found that carers of people with dementia are not getting the support and advice they often desperately need.
Area of Care: 
Mental HealthDay centreRehab CentreHospitalCare homesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesInformation and adviceCommissioning for carersSocial careCommissioning
I work with: 
Adult carersYoung adult carers
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 14:00
Body: 

The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:

  1. When dementia is diagnosed.
  2. When the carer takes on an 'active' caring role.
  3. When the capacity of the person with dementia declines.
  4. When the carer needs emotional support and/or a break from caring.
  5. When the person with dementia loses their mobility.
  6. When the person with dementia has other health problems.
  7. When the carer has to cope with behavioural problems.
  8. When the carer's own circumstances change.
  9. When the person with dementia becomes incontinent.
  10. When decisions about residential care and end of life care have to be made

We have designed a toolkit around these ten points,the issues carers face at these points and what will make a positive difference. It has been produced to sit alongside A Road Less Rocky and gives guidance to professionals who come in contact with carers. The toolkit is useful for anyone who works with or treats patients with dementia and is therefore likely to come into contact with carers. 

A Road Less Rocky – Supporting Carers of People with Dementia complements the Triangle of Care Carers included: A Guide to best Practice for Dementia Care. This document describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia, identifying six key standards required to achieve better collaboration and partnership with carers.

Although the terminology and legislation referred to in this toolkit applies to England the standards and rationale are applicable across the whole of the UK.

Further information

Find further information and download the full report A Road Less Rocky – Supporting Carers of People with Dementia (PDF, 962KB).

Download the toolkit 

Share it: 
Protected: 
No
Type of Content: 
Research

Retirement on Hold

Our Retirement on Hold report highlighted some of the challenges faced by older carers and made recommendations to improve their experience now and in the future. Thank you to all the carers and Network Partners who contributed.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist services
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 13:45
Body: 

Key findings from our report

  • Care coordination – carers said they were spending too much time, and became stressed and anxious when trying to organise care and support for the person with care needs. 
  • Carers are caring for someone else when they have their own age-related health condition.
  • The pressures around carers feeling they had a 'duty to care' – the Care Act recognises that caring should be a choice.
  • Lack of appropriate replacement care to enable carers to take a break. 

Our key recommendations

  • Access to a 'care coordinator' – many older carers felt this would help them navigate the health and care system. It is recognised that with limited resources this may not be feasible, however, earlier referral to a carer organisation may help improve the situation for carers. 
  • Appropriate and timely access to information and advice about support available locally, nationally and UK wide. This information would need to recognise that not all older carers are able to access the internet.
  • Improved access to appropriate and good quality replacement care.
Share it: 
Protected: 
No
Type of Content: 
Good Practice

Older Carers Toolkit

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsSpecialist servicesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, April 27, 2018 - 13:15
Body: 

This toolkit is targeted at commissioners of health and social care in England and aims to highlight the needs of carers aged over 60 and to show tried and tested ways they can be supported.

It shines a spotlight on particular issues most likely to impact on older carers. This can help inform commissioning to properly and most cost-effectively support them. It will also help commissioners fulfil duties to prevent, reduce and delay needs and to support older carers under the Care Act 2014.

Further information

Download the toolkit PDF iconCaring About Older Carers (PDF 307KB)

Share it: 
Protected: 
No
Type of Content: 
Good Practice

Identification of carers in GP practices

Not enough carers are likely to be receiving the support they need or are entitled to. One of the main obstacles to carers getting the right support is identification – both self-identification and identification by health professionals.
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary care
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 12:45
Body: 


There are an estimated seven million unpaid carers in the UK, however not enough carers are likely to be receiving the support they need or are entitled to. One of the main obstacles to carers getting the right support is identification – both self-identification and identification by health professionals.


Self-identification can be problematic as many carers, understandably, see their relationship with the person they care for as one of being a parent, child, neighbour, friend or partner and don’t recognise 'carer' as a term they would use.


This is why identification by health professionals becomes even more important.


Carers Trust’s Raising the voice of carers project works with local Network Partners and aims to give carers the tools and confidence to campaign on issues that matter to them.

Further information

Read our resource –  PDF iconIdentification of Carers in GP Practices (PDF 434 KB).

Share it: 
Protected: 
No
Type of Content: 
Good Practice

Carers Trust ADVANCE mentoring scheme

ADVANCE was an innovative volunteer mentoring programme developed by Carers Trust for chief executives of Network Partners in The Carers Trust Network across the UK. It ran from 2015 to 2018 and is backed by materials for you to download (all available below).
I work in: 
Carers services
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Wednesday, March 21, 2018 - 09:00
Body: 

ADVANCE Mentoring Programme – introduction/overview

Is good leadership about:
  • Knowing all the answers, pretty much all of the time?
  • Coming up with clear-cut solutions to complex problems?
  • Keeping your thoughts to yourself and not being swayed by other people?
Not so, according to a three-year impact study of ADVANCE, an innovative volunteer mentoring programme developed by Carers Trust for chief executives of Network Partners in The Carers Trust Network across the UK – local charities delivering a range of services addressing the needs of unpaid carers and the people they care for. The traditional ‘heroic’ approach to leadership was considered by participants in the 12-month programme to be much less effective than the ability to:
  • Ask searching questions.
  • Listen carefully to different views.
  • Take time to reflect before acting.
Participating in ADVANCE enabled board members and chief executives to re-interpret their leadership role to fit a drastically changing world – a world where flexibility trumps rigidity every time. 
 
There is much to be learned from the experience of senior leaders who learned ‘on the run’ to enhance their confidence and skills in order to regain control of their lives and organisations. 
 
The independent impact study of the ADVANCE mentoring programme, commissioned by Carers Trust and carried out by Marsaili Cameron and Sheila Marsh from PublicServiceWorks, developed materials to support chief executives, board members and others to work separately and together in a focused way to ensure effective strategic leadership.
 
Findings from this study fed in regularly over three years to the ADVANCE mentors (senior volunteers from a wide range of backgrounds) and to the Carers Trust design team for the programme. This process enhanced the learning culture that characterised ADVANCE, supported by the work of Lead Mentor, Hilary Samson-Barry.
 

What materials are available, and how might you use them?

Want a summary of the impact of the ADVANCE mentoring programme?Deep Learning for Hard Times

  • PDF iconDeep Learning for Hard Times (PDF, 219KB) – a booklet summing up the impact of the ADVANCE mentoring programme.
  • Info cards – to support implementing the learning in similar local charities:
    • PDF iconADVANCE Cards A-C  (PDF, 190KB) – focusing on building sustainability, strengthening governance and developing partnership/collaboration – the three top issues tackled through the ADVANCE mentoring programme.
    • PDF iconADVANCE Cards 1-5  (PDF, 351KB) – focusing on transferable skills and practical insights gained by participants in the ADVANCE mentoring programme.

Want to make a presentation or work with a group?

Want to know more about the ADVANCE mentoring programme impact study and see the evidence behind the summary?

Want to discuss ADVANCE further?

If you would like to hear more about the context of  the ADVANCE mentoring programme and its introduction, email Carers Trust.
 
If you would like to know more about the methodology of the impact study, email Sheila Marsh or Marsaili Cameron of PublicServiceWorks.
Downloads: 
PDF icon Deep Learning for Hard Times (plus see more downloads below)
Share it: 

Pages