Commissioning

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Toolkit

Young Carers In Schools - A Toolkit for Local Authorities

Legislation into Practice: Making the Children and Families Act 2014 and the Care Act 2014 a Reality for Young Carers
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary Care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Information and adviceCommissioning for carersCommissioning for young carersSocial careEducationCommissioning
I work with: 
Young carersParent carersSibling carersFamilies
Caring for: 
Young peopleChildren
Location: 
England
Date Revised: 
Tuesday, November 13, 2018 - 15:45
Body: 

A resource for local  authorities working with schools to identify and support young carers. 

This resource supports the case for the effective and economic ways that local young carers services offer both preventative and responsive support for young carers and their families. 

It sets out the case to include the Young Carers in Schools Programme in all aspects of educational support and how this would support local authorities to ensure they fulfil their statutory duties as set out in the Children and Families Act 2014 and the Care Act 2014. 

Most importantly it will ensure positive outcomes for young carers and their families. 

PDF iconLegislation into practice toolkit pdf

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Toolkit

Training resources to help with improving the identification and support of young carers

These resources are designed to support the training of a wide range of professionals and volunteers to identify and support young carers.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careEducationCommissioning
I work with: 
Young carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Monday, September 10, 2018 - 13:00
Body: 
The Department of Health and Social Care funded Carers Trust to develop these training resources, which support a wide variety of professionals, including volunteers, from:
  • Education, health and social care statutory sectors. 
  • Children and young people’s services including youth workers.
  • Young carer services. 
  • Voluntary and community sector organisations. 
  • Faith organisations. 
 
The resources will help professionals to understand young carers, and how an offer of support can be made to them and their families, to reduce excessive or inappropriate caring. 
 
The training covers:
 
  • Defining who young carers are and the challenges they face. 
  • Different types of young carer roles. 
  • Nature of tasks that young carers carry out. 

FileModule 1 - Handout 1 Sample Agenda
PDF iconModule 1 - Handout 2 - What kinds of caring do young carers do
PDF iconModule 1 - Handout 3 What is the impact of caring on young carers

  • Understanding the extent of young carer involvement: nationally and by area.
  • How you may be able to identify who is a young carer.
  • Understanding young carer issues, and potential barriers to their achievement.
  • Different models for identifying young carers.
  • Barriers to young carers seeking support.
 
  • Guidance and advice on how to approach an initial conversation with a child, or parent, in an appropriate and sensitive way.
  • Guidance and advice on who else to involve when, and how to involve them in a sensitive manner that is appropriate for the child and their families. 
  • Recognising appropriate safeguarding issues in relation to young carers and guidance on how to address these.
  • Understanding of confidentiality issues. 
 
Module 4 
  • Guidance and advice on key local stakeholders to involve. 
  • Where to find local support and services to signpost young carers.
Module 5
  • Resource library of tools and templates.
Module 6
  • Securing commitment from participants to take action.

Other materials: 

The training can be delivered in one day, or in modules, for example over a series of team meetings.
 
Carers Trust worked with four Carers Trust Network Partners to develop and deliver these resources in face-to-face training in spring and early summer 2018 to over 220 people:
 
 
We will also deliver a webinar.
 
Please email our Policy team with any feedback about the materials and let us know how you have used them. 
 
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Guidance

Partners in Care

The Royal College of Psychiatrists and The Princess Royal Trust for Carers (now Carers Trust) joined forces and launched the Partners in Care campaign. The partnership produced a range of leaflets on specific conditions and a comprehensive toolkit.
Area of Care: 
Mental Health
Outcomes: 
IntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingCarers involvementCommissioning
Location: 
Whole UK
Date Revised: 
Thursday, May 10, 2018 - 14:30
Body: 

The Royal College of Psychiatrists and The Princess Royal Trust for Carers (now Carers Trust)  joined forces and launched the Partners in Care campaign in January 2004.

The objectives of the campaign were to highlight the problems faced by carers of all ages of people with different mental health problems and learning disabilities, and encourage true partnerships between carers, patients and professionals.

The partnership produced the following leaflets:

  • checklist for professionals working with mental health carers
  • checklist for professionals working with children of parents with mental health problems
  • checklist for carers meeting with psychiatrists
  • confidentiality leaflet.

The partnership also produced a range of leaflets on specific conditions and a comprehensive toolkit.

To find out more and access the leaflets, visit the Partners in Care website.

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A Road Less Rocky - Supporting Carers of People with Dementia 

In May 2012, Carers Trust commissioned the Social Policy Research Unit at the University of York, and Firefly Research & Evaluation, to undertake research to ‘understand more about the caring journey undertaken by carers of people with dementia and the challenges they face, from initial concerns that there may be something wrong to experiences at the end of life and afterwards’.

England and Wales

The Mental Health Act 2007 amends the previous 1983 Act, which governs the compulsory treatment of certain people who have a mental disorder.

In 2015 the government published a new Code of Practice for the Mental Health Act (1983), Carers Trust published a briefing on the key points and what this means for carers.

Carers Trust Mental Health Act Code of Practice 2015 Briefing

Mental Capacity Act 2005

The Mental Capacity Act sets out how people who lack capacity now or may do in the future should be treated and their rights protected.

Scotland

Mental Health (Care and Treatment) Scotland Act 2003

This Act outlines how individuals with a mental disorder are to be treated in community and inpatient settings. 

Adults with Incapacity (Scotland) Act 2000

The Adults with Incapacity (Scotland) Act provides safeguards and standards for the rights of adults who are assessed to lack capacity to make decisions.

Northern Ireland

The Mental Health (Amendment) (Northern Ireland) Order 2004

This Order outlines how individuals with a mental disorder are to be treated in community and inpatient settings.

Current Mental Health Research

Research specifically on mental health caring is more sparse, but examples can be found on the sites below.

 

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Guidance

Working with carers of people with mental health issues

Carers of people with mental health issues deserve support, both in relation to the people they care for, and for themselves as carers. Indeed, carers are often working long hours, in unpredictable circumstances and with little or no help, to care for those closest to them.
Area of Care: 
Mental Health
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Thursday, May 10, 2018 - 13:45
Body: 

Carers of people with mental health problems come into contact with a range of health and social care professionals. Both in the community and in healthcare institutions, carers routinely link with psychiatrists, social workers, nurses, GPs, voluntary and charity staff, as well as many other workers.

Invaluable aid to health professionals

Carers of people with mental health issues deserve support, both in relation to the people they care for, and for themselves as carers. Indeed, carers are often working long hours, in unpredictable circumstances and with little or no help, to care for those closest to them. But in this way, carers are often an invaluable aid to health professionals' work, giving an experienced insight into the care and needs of the service user.

However, there are always challenges working with, and involving carers of people with mental health issues. Dealing with issues such as confidentiality, disputes over care and treatment, and balancing the different needs of carers and service users are common experiences for many healthcare professionals. In this sense, professionals also need support, and the necessary resources to work in partnership with carers. 

Overview of issues

An overview of the issues faced by carers has been produced by Carers Trust, as well as an outline of the key changes which we would like to see happen nationally. 

Making Respite Real in Mental Health

Carers of people with mental health problems benefit from a break from their caring role just like other carers, however, research undertaken by Carers Trust showed that many carers, service users and professionals were unaware of how to respite and carer breaks. Carers Trust has developed guidance for professionals, carers and service users to promote the value of respite, the need for it to be planned for and how to access it.

Download the leaflet  Making Respite Real in Mental Health.

The guidance is suitable for carers, professionals and service users.

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Research

Full of Care Report - Young Carers in Wales 2009

In 2009 the Children's Commissioner at the time, Keith Towler, launched new research and recommendations for Young Carers Services in Wales.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Primary careHealth and wellbeingCommissioning for young carersSocial careEducationCommissioning
I work with: 
Young carers
Location: 
Wales
Date Revised: 
Friday, May 4, 2018 - 10:15
Body: 

The report, entitled Full of Care, aimed to show the barriers young carers face achieving the rights laid out by the United Nations Convention of the Rights of the Child, such as the right to education, to relax and play and to have their views respected. 

The document included the research project All Right Gov' that Powys Carers Service carried out in Summer 2008, travelling all over Wales to meet other young carers projects and listening to their experiences.

The report made a number of recommendations to both Welsh Government and local service boards as well as local authorities, health and The Department of Children, Education Lifelong Learning and Skills.

Early identification and intervention

The fact that 54% of young carers in this survey felt that they only got support in a crisis underlines the importance of early identification and intervention. However, the young carers who took part in this survey were those who had been identified and were receiving support. 

Much of the existing guidance is intended to prevent crises arising through early identification and intervention. It is clear though that there is often a considerable gap between national policy and local practice.

The message ‘Too little, too late’ still resonates today.

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Guidance

Flu Vaccinations for Carers campaign - useful resources

NHS Employers and Carers Trust produced flu campaign guidance and resources in 2014 which healthcare staff can download .
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Primary careHealth and wellbeingPharmacy ServicesCarers servicesInformation and adviceCommissioning for carersSocial careCommissioning
Location: 
England
Date Revised: 
Friday, May 4, 2018 - 09:15
Body: 

Help reach carers across the whole community

NHS Employers and Carers Trust  produced flu campaign guidance and resources in 2014. Carers Trust also produced a set of resources aimed to be used by a wide range of organisations to as well as individuals to encourage flu vaccination uptake among carers. The resources also encourage carers to get in touch with Carers Trust for details of their local carer service. 

The Word versions of each resource were designed to be customised to include your organisation’s own logo.

Further details

For more information about the Flu Vaccination Campaign for Carers, please email Carers Trust.

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Good Practice

Supporting carers of people with dementia in black, Asian and minority ethnic communities

A good practice example of working with carers of people with dementia from diverse communities by the Dementia Information and Support for Carers (DISC) service hosted by Sandwell Crossroads Birmingham
Area of Care: 
Mental HealthPhysical illnessSpecial education needsSpecialist servicesDay centreRehab CentreHospitalCare homesDementia care
Outcomes: 
Carer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesCarers involvementCarers breaksInformation and adviceCommissioning for carersCommissioning
I work with: 
Adult carersFamilies
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Monday, April 30, 2018 - 13:45
Body: 

DISC Dementia information and support for carers

The Disc Service was launched 11 years ago, it is hosted by Sandwell Crossroads and funded by Sandwell and West Birmingham, Cross City, South Central CCG’s, and Birmingham City Council through the Birmingham Bettercare Fund

The service originally operated in West Birmingham, but had funding extended to cover the entire Birmingham City Council area.

The service is focused on supporting carers from the diverse communities in the Birmingham area. The DISC service prides itself on being proactive in recruiting staff from local black, Asian and minority ethnic (BAME) communities who have both the language skills and understand the cultural sensitivities.

The service supports over 400 carers and offers Iiformation, advocacy and support for carers, though one-to-one contact and successful weekly information and support groups.

It also offers a signposting and referral service into other local statutory and voluntary sector services.

Examples of the type of help and support carers have receive:

  • Accessing respite
  • Liaising with district nurses, occupational therapists and social workers.
  • Continence advice and support.
  • Advice in managing changing and unusual behaviours.
  • Finding the right care such as day centres, care homes and care agencies.
  • Talking to the wider family.
  • Advice on benefits and carers' rights.
  • Information on the Mental Capacity Act.
  • Information on lasting power of attorney

DISC's strengths

  • Building relationships with carers over a long period of time.
  • Stepping in to offer support before a crisis develops.
  • Bridging the gap between clinical diagnosis and families coping alone.
  • Making carers feel welcome – 14 of them formally volunteer in supporting other carers.
  • Being led by carers, listening to carers and developing services to meet need.
  • Feeling passionate about the service.

Further information

For more information on the service contact Jo.Moon@sandwellcrossroads.org or visit the Sandwell Crossroads website.

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Good Practice

Empowering Professionals to support Young Carers (EPYC)

Thanks to funding provided by the European Commission through the Erasmus+ programme, a group of organisations from Germany, Scotland, Ireland, Italy and Austria are working to find new ways to support young carers.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Carers servicesEmploymentSocial careEducationCommissioning
I work with: 
Young adult carersYoung carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Scotland
Date Revised: 
Monday, April 30, 2018 - 13:30
Body: 

About the Empowering Professionals to support Young Carers (EPYC) project

Thanks to funding provided by the European Commission through the Erasmus+ programme, a group of organisations from Germany, Scotland, Ireland, Italy and Austria are working to find new ways to support young carers.

Each country involved in the EPYC project will develop a new tool, which we hope will help youth professionals - like teachers, social worker or youth workers - to better support young carers.

The tools aim to aid in the identification of young carers, to allow practitioners to assess the situation of young and young adult carers, including measuring the level and impact of the care burden, and to allow practitioners to develop an action plan to address issues adversely affecting young and young adult carers.

We will then trial the tool to see how it can help make Scotland a better place for young and young adult carers to grow up in.

Why is this project happening?

Young and young adult carers carry out, often on a regular basis, significant caring tasks and assume a level of responsibility which would not usually be associated with their age group.

Although research has provided clear evidence that heavy caring responsibilities can result in emotional difficulties, health problems, social exclusion and limited opportunities for social and leisure activities, professional support services are lacking in many EU countries.

Who is involved in the project?

The two year EU funded project started in August 2016  involving a strategic partnership of six European organisations, namely Carers Trust Scotland (UK), Diakonisches Werk Berlin Stadtmitte e.V. (Germany), Care Alliance Ireland (Ireland), Anziani e non solo (Italy), ARC ORK (Austria) and IPS Versari Macrelli (Italy).

The kick off meeting, hosted by the leading partner, Diakonisches Werk Berlin Stadtmitte e.V., was held in Berlin on 12 September 2016.

What can you do now?

Expected EPYC project outcomes

In the course of the project, intermediate expected results include:

  • An increased capacity of organisations to identify young and young adult carers.
  • An increased knowledge of promising or successful experiences and practices from other European countries.
  • An increased awareness of the challenges faced by young and young adult carers in the different local contexts involved directly or indirectly in project activities.

The outcome of the project is the improved expertise in this field and professional stakeholders having the knowledge to develop support services for young and young adult carers and work with relevant sectors to improve support.

If you are interested to know more about the EPYC project  contact:

  • Louise Morgan, Carers Trust Scotland, Young Carers Development Manager Working with the SYCSA. 
  • Paul Traynor, Carers Trust Scotland, Policy and Campaigns Officer (Young and Young Adult Carers). 
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Toolkit

Carers Hub: A commissioners tool for mapping local services in consultation with carers

The Carers’ Hub can be used in consultation with carers and local services as a tool to map local carer need and service provision.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary Care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingCarers servicesEmploymentSocial careEducationCommissioning
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Monday, April 30, 2018 - 10:45
Body: 

The Carers’ Hub is a model of comprehensive carers support, developed by Carers Trust with assistance from the Association of Directors of Adult Social Services and funding from the Department of Health. It can be used as a resource for all those looking to commission and develop personalised services for carers.

At the centre of the Hub diagram are the outcomes of the refreshed National Carers Strategy for England. The white band represents a three-pronged approach that can be used to inform strategic planning, and the 17 spokes on the outside of the circle illustrate the complete range of interventions that every area needs in order to deliver the intended outcomes.

Using the Carers' Hub

The Carers’ Hub can be used in consultation with carers and local services as a tool to map local carer need and service provision. In order to assess what mixture of interventions might be necessary to achieve the outcomes of the National Carers’ Strategy in a local area, the first step would be to carry out consultation to establish:
  • What services are currently available.
  • Which of the National Carers’ Strategy outcomes are being met.
  • Which groups are being served.
  • What local carers and their families want.
A simple way to do this is by printing large copies of the Hub and asking carers to write comments or attach post-it notes under the interventions that are well provided locally. Then use another copy of the Hub (or different colour post-it notes) to repeat the process asking carers to indicate where there are gaps in services. 
 
You may wish to ask carers to make notes on the post-its about the quality of services and who is providing them. As a separate exercise, you may wish to ask carers to repeat the process indicating how well each of the five outcomes at the centre of the Hub are being met. Involving professionals and local service providers in the process will help to give you a complete picture of services in your area.

Local strategic planning

The Hub's three-pronged approach to local strategic planning - in the white middle band of the Hub: carer-led, identify and include and whole-area - can then be applied in order to inform the development and implementation of the most appropriate mix of interventions. 
 
Ideally, carer representatives and professionals should sit down together to analyse the messages and identify priorities, so it may be best to carry out this process at meetings (for example, of carer strategy groups or multi-disciplinary agency groups).
 
The results of the Carers’ Hub consultation process can help to inform Joint Strategic Needs Assessments, Joint Health and Wellbeing Strategies and other audit and planning processes, and maximise resources through the development of more efficient services and partnerships. The process can be repeated at a later date in order to help monitor local progress on strategy implementation.
 
Although the terminology on the Hub comes from English legislation, the rationale and process are applicable across the whole of the UK.

Further information

Download the PDF iconCarers Hub Toolkit for Commissioners (PDF, 1,241 KB).

There is also a Powerpoint version of the Hub with editable text boxes to make notes and/or compile your results.

Further details of the origins of the Hub and how to assess local services in relation to the Carers' Strategy can be found in Commissioning for Carers: an Action Guide for Decision-Makers and Commissioning Better Outcomes for Carers.

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