Young adult carers

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Educational

Protecting Young Carers from Bullying

Protecting Young Carers from Bullying: A Guide for Schools, Community Groups and Policy Makers
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Education
I work with: 
Young adult carersYoung carersSibling carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 14:30
Body: 

This guide is aimed at all professionals who work with young people and are therefore likely to come across young carers. It aims to raise the awareness and understanding of the relationship between being a young carer and bullying, in order that proactive steps can be taken to help prevent young carers from being bullied.

Further information

Download the Carers Trust resource – PDF iconProtecting Young Carers from Bullying a Guide for Schools Community Groups and Policy Makers

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Research

A Road Less Rocky Supporting Carers of People with Dementia

A Road Less Rocky is a report from Carers Trust that found that carers of people with dementia are not getting the support and advice they often desperately need.
Area of Care: 
Mental HealthDay centreRehab CentreHospitalCare homesPrimary CareSecondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingPharmacy ServicesCarers servicesInformation and adviceCommissioning for carersSocial careCommissioning
I work with: 
Adult carersYoung adult carers
Caring for: 
AdultsOlder adults
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 14:00
Body: 

The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:

  1. When dementia is diagnosed.
  2. When the carer takes on an 'active' caring role.
  3. When the capacity of the person with dementia declines.
  4. When the carer needs emotional support and/or a break from caring.
  5. When the person with dementia loses their mobility.
  6. When the person with dementia has other health problems.
  7. When the carer has to cope with behavioural problems.
  8. When the carer's own circumstances change.
  9. When the person with dementia becomes incontinent.
  10. When decisions about residential care and end of life care have to be made

We have designed a toolkit around these ten points,the issues carers face at these points and what will make a positive difference. It has been produced to sit alongside A Road Less Rocky and gives guidance to professionals who come in contact with carers. The toolkit is useful for anyone who works with or treats patients with dementia and is therefore likely to come into contact with carers. 

A Road Less Rocky – Supporting Carers of People with Dementia complements the Triangle of Care Carers included: A Guide to best Practice for Dementia Care. This document describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia, identifying six key standards required to achieve better collaboration and partnership with carers.

Although the terminology and legislation referred to in this toolkit applies to England the standards and rationale are applicable across the whole of the UK.

Further information

Find further information and download the full report A Road Less Rocky – Supporting Carers of People with Dementia (PDF, 962KB).

Download the toolkit PDF iconA Road Less Rocky: Making the Road Less Rocky for Carers, A Guide on how to Support Carers of People with dementia

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Good Practice

Identification of carers in GP practices

Not enough carers are likely to be receiving the support they need or are entitled to. One of the main obstacles to carers getting the right support is identification – both self-identification and identification by health professionals.
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingCarer awarenessIdentifying carers
I work in: 
Health carePrimary care
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Friday, April 27, 2018 - 12:45
Body: 


There are an estimated seven million unpaid carers in the UK, however not enough carers are likely to be receiving the support they need or are entitled to. One of the main obstacles to carers getting the right support is identification – both self-identification and identification by health professionals.


Self-identification can be problematic as many carers, understandably, see their relationship with the person they care for as one of being a parent, child, neighbour, friend or partner and don’t recognise 'carer' as a term they would use.


This is why identification by health professionals becomes even more important.


Carers Trust’s Raising the voice of carers project works with local Network Partners and aims to give carers the tools and confidence to campaign on issues that matter to them.

Further information

Read our resource –  PDF iconIdentification of Carers in GP Practices (PDF 434 KB).

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Educational

About Time Grant Evaluations

Following the successful delivery of two About Time Grant programmes, Time for Change and Take Action and Support which addressed issues that can lead to young adult carers becoming disengaged from society, independent evaluations of the two programmes have been produced.
Area of Care: 
Mental HealthPhysical illness
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carersCarers in employment
I work in: 
Primary careMental health careHealth and wellbeingCarers involvementCarers breaksInformation and adviceCommissioning for carersEmploymentSocial careEducationCommissioning
I work with: 
Young adult carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Monday, February 12, 2018 - 10:00
Body: 

Key points: 

The objectives of the evaluations were to:
  • Provide an overall evaluation of all data to assess the progress of funded projects against the aims and objectives of the About Time grant programmes and of the wider About Time programme.
  • Conduct a qualitative study with funded projects to identify effective strategies and approaches for supporting and enabling young adult carers.
  • Provide a focused evaluation of data derived from outcomes measurement tools designed to measure the extent of care undertaken, the positive and negative impacts of caring for young adult carers and changes in their lives because of taking part in the funded intervention.
  • Evaluate the impacts of programme delivery and Carers Trust grant making processes on funded organisations.

About Time evaluations

The evaluations of the Time for Change and Take Action and Support grant programmes were structured in three phases and each had its own evaluation report with an overview of the whole programme also produced.

Phase one: February–October 2015

 

Phase two: November 2015–November 2016

PDF iconAbout Time Grant Programmes Evaluation Report Phase 2 November 2015 to November 2016 Executive Summary PDF (177 KB)

PDF iconAbout Time Grant Programmes Evaluation Report Phase 2 November 2015  to November 2016 PDF (323 KB)

Phase three: December 2016–October 2017

PDF icon About Time Grant Programme Evaluation Report Phase 3 December 2016 to October 2017 Executive Summary PDF (251 KB)

PDF icon About Time Grant Programme Evaluation Report Phase 3 December 2016 to October 2017 PDF (483 KB)

Overview Report

PDF icon About Time Grant Programme Evaluation Overview Report PDF (519 KB)

Key achievements and learning from the programmes include:

  • Around 7,200 young adult carers have benefited from 114 projects delivered by Carers Trust Network Partners, exceeding the original target of 6,200 young adult carers.
  • Programmes provided support to significant numbers of young adult carers for the first time, with over half of the young people participating being new to Carers Trust Network Partners.
  • Programmes developed a flexible response to the needs of young adult carers, including individual support, group activities and access to small grants for individuals, alongside the development of partnerships.
  • The programme design involved young adult carers and Network Partners, ensuring programmes reflected specific needs across UK.
  • Projects have been successful in reaching a representative group of young adult carers and there was a good geographic spread of projects across the UK.
  • Carers Trust has enabled Network Partners to deliver effective projects by being flexible about delivery approaches and providing good quality support, information and training.
  • The Carers Trust Network has a unique role in supporting the needs of young adult carers.
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Good Practice

Carers Trust ADVANCE mentoring scheme

ADVANCE was an innovative volunteer mentoring programme developed by Carers Trust for chief executives of Network Partners in The Carers Trust Network across the UK. It ran from 2015 to 2018 and is backed by materials for you to download (all available below).
I work in: 
Carers services
I work with: 
Adult carersYoung adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Whole UK
Date Revised: 
Wednesday, March 21, 2018 - 09:00
Body: 

ADVANCE Mentoring Programme – introduction/overview

Is good leadership about:
  • Knowing all the answers, pretty much all of the time?
  • Coming up with clear-cut solutions to complex problems?
  • Keeping your thoughts to yourself and not being swayed by other people?
Not so, according to a three-year impact study of ADVANCE, an innovative volunteer mentoring programme developed by Carers Trust for chief executives of Network Partners in The Carers Trust Network across the UK – local charities delivering a range of services addressing the needs of unpaid carers and the people they care for. The traditional ‘heroic’ approach to leadership was considered by participants in the 12-month programme to be much less effective than the ability to:
  • Ask searching questions.
  • Listen carefully to different views.
  • Take time to reflect before acting.
Participating in ADVANCE enabled board members and chief executives to re-interpret their leadership role to fit a drastically changing world – a world where flexibility trumps rigidity every time. 
 
There is much to be learned from the experience of senior leaders who learned ‘on the run’ to enhance their confidence and skills in order to regain control of their lives and organisations. 
 
The independent impact study of the ADVANCE mentoring programme, commissioned by Carers Trust and carried out by Marsaili Cameron and Sheila Marsh from PublicServiceWorks, developed materials to support chief executives, board members and others to work separately and together in a focused way to ensure effective strategic leadership.
 
Findings from this study fed in regularly over three years to the ADVANCE mentors (senior volunteers from a wide range of backgrounds) and to the Carers Trust design team for the programme. This process enhanced the learning culture that characterised ADVANCE, supported by the work of Lead Mentor, Hilary Samson-Barry.
 

What materials are available, and how might you use them?

Want a summary of the impact of the ADVANCE mentoring programme?Deep Learning for Hard Times

  • PDF iconDeep Learning for Hard Times (PDF, 219KB) – a booklet summing up the impact of the ADVANCE mentoring programme.
  • Info cards – to support implementing the learning in similar local charities:
    • PDF iconADVANCE Cards A-C  (PDF, 190KB) – focusing on building sustainability, strengthening governance and developing partnership/collaboration – the three top issues tackled through the ADVANCE mentoring programme.
    • PDF iconADVANCE Cards 1-5  (PDF, 351KB) – focusing on transferable skills and practical insights gained by participants in the ADVANCE mentoring programme.

Want to make a presentation or work with a group?

Want to know more about the ADVANCE mentoring programme impact study and see the evidence behind the summary?

Want to discuss ADVANCE further?

If you would like to hear more about the context of  the ADVANCE mentoring programme and its introduction, email Carers Trust.
 
If you would like to know more about the methodology of the impact study, email Sheila Marsh or Marsaili Cameron of PublicServiceWorks.
Downloads: 
PDF icon Deep Learning for Hard Times (plus see more downloads below)
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Toolkit

5. Tools to support services with limited capacity to signpost schools to Young Carers in Schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for young carers services who have limited capacity to signpost schools to Young Carers in Schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 16:15
Body: 

This is section 5 of the tools in Supporting Young Carers in Schools: A Toolkit for Young Carers Services

For tools to support your work to signpost schools to the Young Carers in School programme in your local area, please see below: 

FileTool 1: Template text for use on websites (Word 948KB)

PDF iconTool 2: Young Carers in Schools impact inographic (PDF 162KB)

Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

4. Tools to support services to gather impact data from schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for services who want to gather impact data from schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 16:00
Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

3. Tools to support services to build and maintain engagement with schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for schools who want to build and maintain engagement with schools.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 15:45
Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

2. Tools to support services to raise the local profile of Young Carers in Schools

This step, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for young carers services who want to raise the local profile of the Young Carers in Schools programme.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsPrimary CareSecondary CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 15:00
Body: 

This is section 2 of the tools in Supporting Young Carers in Schools: A Toolkit for Young Carers Services. 

For tools to support your work to raise the profile of the Young Carers in School programme in your local area, please see below: 

FileTool 1: Template letter to local authorities (Word 953KB)

FileTool 2: Template letter to Regional Schools Commissioners (Word 954KB)

FileTool 3: Template letter to dioceses (Word 953KB)

FileTool 4: Template letter to local branches of education sector trade unions and associations (Word 951KB)

PDF iconTool 5: Education sector trade unions and associations newsletter articles/blogs promoting Young Carers in Schools (PDF 154KB)

FileTool 6: Template letter and newsletter articles to school networks promoting Young Carers in Schools (Word 954KB)

FileTool 7: Template text about Young Carers in Schools for use on websites (Word 950KB)

PDF iconTool 8: Young Carers in Schools impact infographic (PDF 162KB)

FileTool 9: Template letter to governors (Word 954KB)

FileTool 10: Template letter to headteachers (for young carers services which are currently in partnership with schools) (Word 952KB)

FileTool 11: Template letter for headteachers (for young carers who have not engaged with schools previously) (Word 953KB)

Office presentation iconTool 12: Young Carers in Schools introductory powerpoint (PP 1,996KB)

FileTool 13: Checklist of key messages to include in communications with schools (Word 950KB)

FileTool 14: Checklist of resources to hand out to schools (Word 948KB)

PDF iconTool 15: Young Carers in Schools A4 promotional leaflet (editable) (PDF 190KB)

FileTool 16: Young Carers in Schools quote bank (Word 951KB)

FileTool 17: A checklist to support governing bodies to evaluate the effectiveness of their school's provision (Excel 19KB)

Downloads: 
PDF icon Supporting Young Carers in Schools: A Toolkit for Young Carers Services
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Toolkit

1. Tools to support services to secure funding for local school engagement work

This tool, taken from Supporting Young Carers in Schools: A Toolkit for Young Carers Services, provides key information for young carers services on gaining funding for school engagement work.
Area of Care: 
Mental HealthPhysical illnessAlcohol MisuseSubstance MisuseSpecial education needsDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCommissioning for young carersEducation
I work with: 
Young adult carersYoung carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, September 15, 2017 - 14:45
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