Integration

Protected: 
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Toolkit

Training resources to help with improving the identification and support of young carers

These resources are designed to support the training of a wide range of professionals and volunteers to identify and support young carers.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health careCarers servicesSocial careEducationCommissioning
I work with: 
Young carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Monday, September 10, 2018 - 13:00
Body: 
The Department of Health and Social Care funded Carers Trust to develop these training resources, which support a wide variety of professionals, including volunteers, from:
  • Education, health and social care statutory sectors. 
  • Children and young people’s services including youth workers.
  • Young carer services. 
  • Voluntary and community sector organisations. 
  • Faith organisations. 
 
The resources will help professionals to understand young carers, and how an offer of support can be made to them and their families, to reduce excessive or inappropriate caring. 
 
The training covers:
 
  • Defining who young carers are and the challenges they face. 
  • Different types of young carer roles. 
  • Nature of tasks that young carers carry out. 

FileModule 1 - Handout 1 Sample Agenda
PDF iconModule 1 - Handout 2 - What kinds of caring do young carers do
PDF iconModule 1 - Handout 3 What is the impact of caring on young carers

  • Understanding the extent of young carer involvement: nationally and by area.
  • How you may be able to identify who is a young carer.
  • Understanding young carer issues, and potential barriers to their achievement.
  • Different models for identifying young carers.
  • Barriers to young carers seeking support.
 
  • Guidance and advice on how to approach an initial conversation with a child, or parent, in an appropriate and sensitive way.
  • Guidance and advice on who else to involve when, and how to involve them in a sensitive manner that is appropriate for the child and their families. 
  • Recognising appropriate safeguarding issues in relation to young carers and guidance on how to address these.
  • Understanding of confidentiality issues. 
 
Module 4 
  • Guidance and advice on key local stakeholders to involve. 
  • Where to find local support and services to signpost young carers.
Module 5
  • Resource library of tools and templates.
Module 6
  • Securing commitment from participants to take action.

Other materials: 

The training can be delivered in one day, or in modules, for example over a series of team meetings.
 
Carers Trust worked with four Carers Trust Network Partners to develop and deliver these resources in face-to-face training in spring and early summer 2018 to over 220 people:
 
 
We will also deliver a webinar.
 
Please email our Policy team with any feedback about the materials and let us know how you have used them. 
 
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Guidance

Partners in Care

The Royal College of Psychiatrists and The Princess Royal Trust for Carers (now Carers Trust) joined forces and launched the Partners in Care campaign. The partnership produced a range of leaflets on specific conditions and a comprehensive toolkit.
Area of Care: 
Mental Health
Outcomes: 
IntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingCarers involvementCommissioning
Location: 
Whole UK
Date Revised: 
Thursday, May 10, 2018 - 14:30
Body: 

The Royal College of Psychiatrists and The Princess Royal Trust for Carers (now Carers Trust)  joined forces and launched the Partners in Care campaign in January 2004.

The objectives of the campaign were to highlight the problems faced by carers of all ages of people with different mental health problems and learning disabilities, and encourage true partnerships between carers, patients and professionals.

The partnership produced the following leaflets:

  • checklist for professionals working with mental health carers
  • checklist for professionals working with children of parents with mental health problems
  • checklist for carers meeting with psychiatrists
  • confidentiality leaflet.

The partnership also produced a range of leaflets on specific conditions and a comprehensive toolkit.

To find out more and access the leaflets, visit the Partners in Care website.

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A Road Less Rocky - Supporting Carers of People with Dementia 

In May 2012, Carers Trust commissioned the Social Policy Research Unit at the University of York, and Firefly Research & Evaluation, to undertake research to ‘understand more about the caring journey undertaken by carers of people with dementia and the challenges they face, from initial concerns that there may be something wrong to experiences at the end of life and afterwards’.

England and Wales

The Mental Health Act 2007 amends the previous 1983 Act, which governs the compulsory treatment of certain people who have a mental disorder.

In 2015 the government published a new Code of Practice for the Mental Health Act (1983), Carers Trust published a briefing on the key points and what this means for carers.

Carers Trust Mental Health Act Code of Practice 2015 Briefing

Mental Capacity Act 2005

The Mental Capacity Act sets out how people who lack capacity now or may do in the future should be treated and their rights protected.

Scotland

Mental Health (Care and Treatment) Scotland Act 2003

This Act outlines how individuals with a mental disorder are to be treated in community and inpatient settings. 

Adults with Incapacity (Scotland) Act 2000

The Adults with Incapacity (Scotland) Act provides safeguards and standards for the rights of adults who are assessed to lack capacity to make decisions.

Northern Ireland

The Mental Health (Amendment) (Northern Ireland) Order 2004

This Order outlines how individuals with a mental disorder are to be treated in community and inpatient settings.

Current Mental Health Research

Research specifically on mental health caring is more sparse, but examples can be found on the sites below.

 

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Guidance

Working with carers of people with mental health issues

Carers of people with mental health issues deserve support, both in relation to the people they care for, and for themselves as carers. Indeed, carers are often working long hours, in unpredictable circumstances and with little or no help, to care for those closest to them.
Area of Care: 
Mental Health
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health carePrimary careHospitalsMental health careHealth and wellbeingCarers servicesSocial careCommissioning
I work with: 
Adult carersParent carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Thursday, May 10, 2018 - 13:45
Body: 

Carers of people with mental health problems come into contact with a range of health and social care professionals. Both in the community and in healthcare institutions, carers routinely link with psychiatrists, social workers, nurses, GPs, voluntary and charity staff, as well as many other workers.

Invaluable aid to health professionals

Carers of people with mental health issues deserve support, both in relation to the people they care for, and for themselves as carers. Indeed, carers are often working long hours, in unpredictable circumstances and with little or no help, to care for those closest to them. But in this way, carers are often an invaluable aid to health professionals' work, giving an experienced insight into the care and needs of the service user.

However, there are always challenges working with, and involving carers of people with mental health issues. Dealing with issues such as confidentiality, disputes over care and treatment, and balancing the different needs of carers and service users are common experiences for many healthcare professionals. In this sense, professionals also need support, and the necessary resources to work in partnership with carers. 

Overview of issues

An overview of the issues faced by carers has been produced by Carers Trust, as well as an outline of the key changes which we would like to see happen nationally. 

Making Respite Real in Mental Health

Carers of people with mental health problems benefit from a break from their caring role just like other carers, however, research undertaken by Carers Trust showed that many carers, service users and professionals were unaware of how to respite and carer breaks. Carers Trust has developed guidance for professionals, carers and service users to promote the value of respite, the need for it to be planned for and how to access it.

Download the leaflet  Making Respite Real in Mental Health.

The guidance is suitable for carers, professionals and service users.

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Toolkit

Triangle of Care in Wales

Carers Trust Wales and the Royal College of Nursing are delighted to have been able to explore an adaptation of the Triangle of Care to meet the needs of carers of people with dementia in acute hospitals in Wales.
Area of Care: 
Secondary CareAcute CareDementia care
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Health care
I work with: 
Adult carersYoung adult carersYoung carersFamilies
Caring for: 
AdultsOlder adults
Location: 
Wales
Date Revised: 
Wednesday, May 9, 2018 - 13:15
Body: 

The Triangle of Care, Carers Included: A Guide to Best Practice in Dementia Care, Wales Edition

Carers Trust Wales has been extremely keen to build on the success of the Triangle of Care model in England and Scotland  by advocating and supporting the implementation of the Triangle of Care standards for carers accessing services in local health boards across Wales.

Funded through the RCN Foundation, the recent development of a Triangle of Care for dementia Wales edition has been a collaborative effort between the Royal College of Nursing and Carers Trust Wales. It has been developed from the original Triangle of Care for dementia, which was co-designed with carers, people with dementia and practitioners, with the support of Uniting Carers and Dementia UK. 

Overview

According to the National Assembly for Wales Research Service, dementia is the top health concern in Wales and yet Wales has the lowest rate of diagnosis across all UK nations at just 43%. There are an estimated 45,000 people in Wales currently living with dementia and this figure is predicted to rise steadily over the next decade bringing with it dramatic financial and human impact. The cost to the Welsh economy is an estimated £1.4bn a year which includes costs to the NHS and social services, although research shows that people with dementia, carers and their families currently bear around two-thirds of the costs themselves (National Assembly for Wales Research Service, 2016).

In Wales, 50% of health boards have shown an active interest in implementing a Triangle of Care model and support is growing within other health boards throughout Wales. We hope the new Welsh edition for best practice in dementia care can lead to consistent carer involvement and support across all health and social care services irrespective of where and when a person is being treated. The partnership between Carers Trust and the Royal College of Nursing has been incredibly positive and we hope that this can be replicated across health services with nurses and carers working as partners.

Further information

For further information on the Triangle of Care in Wales contact Gill Winter, Carers Partnership Manager, Carers Trust Wales.

 

Downloads: 
PDF icon Triangle of Carer Carers Included: A Guide to Best Practice for Dementia Care, Wales editionPDF icon Triongl Gofal Cynnwys Gofalwyr: Canllaw i Arfer Gorau ar gyfer Gofal Dementia, Argraffiad Cymru
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Good Practice

Supporting Students with Caring Responsibilities: A Resource for Further Education Providers to Help Young Adult Carers Succeed In Further Education in Wales

A Wales-specific, user-friendly resource, this toolkit was developed in partnership with Learning and Work Institute to increase awareness of student carers and their specific needs, promote existing good practice from colleges and carers services and offering expert recommendations.
Area of Care: 
Mental HealthSpecial education needs
Outcomes: 
PreventionWellbeingIntegrationCarer awarenessIdentifying carers
I work in: 
Carers servicesCarers involvementInformation and adviceCommissioning for young carersEducation
I work with: 
Young adult carersYoung carersParent carersSibling carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Wales
Date Revised: 
Tuesday, October 9, 2018 - 10:45
Body: 

Student Carers in Further Education

In 2015 Carers Trust worked with the National Institute for Adults Continuing Education (NIACE) to develop a practical resource for colleges. In 2017 Carers Trust Wales and Learning and Work Institute worked together to develop Supporting Students with Caring Responsibilities: A Resource for Further Education Providers to Help Young Adult Carers Succeed in Further Education in Wales, drawing on good practice from colleges and carers centres across Wales. 

This interactive resource has been designed to generate momentum for identifying and supporting student carers within colleges. We hope that it will inspire and assist all colleges to build on good practice to develop their own approaches to identifying and supporting this student group. In doing so, this will ensure that students who are caring for others - students whom, in many instances, will have overcome very difficult circumstances and have aquired valuable transferable skills along the way - are able to reach their potential and successfully achieve their educational aims. 

Feedback

Carers Trust Wales will be contacting colleges across Wales in September 2018 for feedback on the implementation on the toolkit.

Downloads: 
PDF icon Supporting Students with Caring Responsibilities: A Good Practice GuidePDF icon Cefnogi Myfyrwyr a chanddynt Gyfrifoldebau Gofal: Canllaw Arfer Da
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Research

Full of Care Report - Young Carers in Wales 2009

In 2009 the Children's Commissioner at the time, Keith Towler, launched new research and recommendations for Young Carers Services in Wales.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Primary careHealth and wellbeingCommissioning for young carersSocial careEducationCommissioning
I work with: 
Young carers
Location: 
Wales
Date Revised: 
Friday, May 4, 2018 - 10:15
Body: 

The report, entitled Full of Care, aimed to show the barriers young carers face achieving the rights laid out by the United Nations Convention of the Rights of the Child, such as the right to education, to relax and play and to have their views respected. 

The document included the research project All Right Gov' that Powys Carers Service carried out in Summer 2008, travelling all over Wales to meet other young carers projects and listening to their experiences.

The report made a number of recommendations to both Welsh Government and local service boards as well as local authorities, health and The Department of Children, Education Lifelong Learning and Skills.

Early identification and intervention

The fact that 54% of young carers in this survey felt that they only got support in a crisis underlines the importance of early identification and intervention. However, the young carers who took part in this survey were those who had been identified and were receiving support. 

Much of the existing guidance is intended to prevent crises arising through early identification and intervention. It is clear though that there is often a considerable gap between national policy and local practice.

The message ‘Too little, too late’ still resonates today.

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Good Practice

Supporting Carers in Primary Care Learning Event

Carers Trust hosted the Supporting Carers in Primary Care Learning Event in November 2014. The event brought together over 100 professionals from across the sector who work to identify and support carers across primary care.
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health carePrimary careMental health careHealth and wellbeingCarers servicesInformation and adviceCommissioning for carers
I work with: 
Adult carersParent carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, May 4, 2018 - 09:00
Body: 

Carers Trust hosted the Supporting Carers in Primary Care Learning Event in November 2014. This annual event was funded by the Department of Health as part of the wider Supporting Carers in Primary Care programme. 

The large scale event brought together over 100 professionals from across the sector who work to identify and support carers across primary care. 

The day provided an excellent opportunity for sharing information and good practice and the additional networking hour at the end of the day provided the ideal opportunity for delegates to reflect on what they had learnt together. The  evaluation feedback demonstrates that delegates found the day both informative and useful.

The programme

Rick Bolton, who cares for his four-year-old son led the day, sharing his account of what being a carer means to him. Delegates heard from a variety of expert speakers including Wendy Nicholson, Professional Office for School and Community Nursing at the Department of Health, Jen Kenwood, Head of Patient Experience – Community, Primary and Integrated Care at NHS England and Moira Fraser, former Interim CEO and Director of Policy at Carers Trust, as well as taking part in a selection of workshops. 

View the presentations

The event presentations will be useful for staff from carers services and other organisations who support carers in primary care.  You can also preview what was covered in the workshops. 

Supporting Carers in Primary Care Learning Event – view the presentations

 

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Good Practice

Supporting Carers in Primary Care Learning Event – presentations

View the presentations from the Supporting Carers in Primary Care Learning Event that Carers Trust hosted in November 2014.
Area of Care: 
Primary Care
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Health carePrimary careMental health careHealth and wellbeingCarers servicesInformation and adviceCommissioning for carers
I work with: 
Adult carersParent carers
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
England
Date Revised: 
Friday, May 4, 2018 - 09:00
Body: 

These presentations will be useful for  staff from carers services and other organisations who support carers in primary care.  You can also preview what was covered in the workshops. 

Morning plenary presentations 

Policymaking to primary care practice making it happen at the sharp end (Moira Fraser, former Interim CEO and Head of Policy, Carers Trust)

Moira Fraser explained that much needs to be done to turn the rhetoric into reality and overcome the barriers facing carers organisations working with the NHS to identify carers. 

Cosying up: how CCGs can partner carers (Dr Michael Taylor, Lead GP for Carers Services at Heywood, Middleton and Rochdale CCG)

Find out which strategies Dr Michael Taylor recommends to improve support for carers by working in partnership with CCGs.

RCGPs supporting carers in general practice programme (Dr Nazia Mohammed, Clinical Champion for Carers, RCGP)

Dr Nazia Mohammed provided an overview of the College’s work to improve carer identification and support in general practice.

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Morning workshops 

Delegates were able to choose between the following morning workshops:  

How to network effectively across the health economy to maximise support for carers (Michelle Pilling Lay, Advisor Quality & Patient Experience, East Lancashire CCG)

An overview of the current landscape in health and the opportunities to maximise the impact of the Primary Care Identification Worker.

GP audits and GP investors in carers standard accreditation (Louise Shaw, Primary Care Lead & Carer Assessment Support worker and Hazel Wright, Adult Services Manager, Northampton Carers)  

Outlines the successes and challenges of co-produced primary care Interface work over five years with specific focus on the implementation of annual audits and the launch of Northamptonshire Investors in Carers Standard accreditation.   

Developing and maintaining a carers links network in Salford (Julia Ellis, former Development Manager for Primary Care and Outreach, Carers Trust)

Provides an overview of the successful and well-established Carers Links Network in Salford. Learn how the service that provides 300 referrals per annum from the primary care sector was established, developed and maintained.

Effective monitoring and evaluation tools to assess the impact of emotional support services for carers (Clare Edwards, Carer Health Worker, West Cumbria Carers)

Explores how to effectively assess the impact of services in supporting carers’ mental wellbeing using questionnaires developed by NICE.  

We also held a workshop on young carers which was  led by Rick Bolton, Dr Nazia Mohammed and Daniel Phelps. It was agreed we all need to work together to generate a culture of change and focus on developing good long term relationships to encourage lengthy engagement. Solutions discussed included:

  • A whole family approach - ensuring young carers are identified when parents present with chronic illness for example.
  • GP awareness training - the same read code would be used for young carers as adult carers.
  • Remembering that primary care is much wider than GP surgeries.
  • NHS employees’ awareness training.
  • Continued identification through schools / colleges.
  • Identifying young carers early through health visitors and children’s centres.
  • Importance of relationships such as a long-term relationship between pharmacy staff and families.
  • Professionals having the awareness of young carers and the confidence to ask appropriate questions.
  • Important to find champions with passion to drive work forward in own establishments.

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Afternoon plenary presentations

Community pharmacy - how can it help support carers (Alastair Buxton, Head of NHS Services at PSNC) 

Describes the community pharmacy services which can support carers and the Carers Trust / Pharmaceutical Services Negotiating Committee pilot to test carer identification in community pharmacies in England.

Supporting the health and wellbeing of carers (Wendy Nicholson, Professional Officer for School and Community Nursing at the Department of Health)

Demonstrates that community nurses are keen to extend their understanding of carers’ needs and to ensure carers’ wellbeing needs are met.

Further guidance on supporting adult carers through community nursing can be found on the Supporting adult carers through community nursing page.

NHS England commitment to carers - can it make a difference (Jen Kenwood, Head of Patient Experience – Community, Primary and Integrated Care, NHS England)

Described NHS England’s commitment to carers, which comprises 37 commitments spread across eight key priorities, from raising the profile of carers to person-centred coordinated care. 

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Afternoon workshops

Delegates were able to choose between the following afternoon workshops:

The carers health team: a methodology to prevent carers falling between the gaps in our systems (Geoff Coleman, Chief Executive, Crossroads Care South Central)

Explored using a collaborative approach to support carers involving a partnership between Crossroads Care, Carers Health Team (NHS) and Carers Support West Sussex.

Carer awareness training for pharmacies (Anne Cole, Regional Manager South West, CPPE)

A guide to the new carer-awareness training resources for pharmacy teams co-produced by the Centre For Pharmacy Postgraduate Education (CPPE) and Carers Trust to improve the identification and referral of carers and how this fits into the Carer Friendly Pharmacy Pilot.

Supporting carers through integrated care (Helen Brown, Health Development Lead Carers Resource, Harrogate) 

Evidences the value of providing support for carers by establishing a service for carers within Integrated Care Teams. It highlights the success of the service in identifying and reaching out to ‘hidden’ carers and the benefits to all the multi-disciplinary professionals involved.

Supporting carers through e-learning for community nurses (Jennie Whitford – Carers Project Manager, QNI) 

Explores the digital Carers Resource for community nurses which has been developed by The Queen's Nursing Institute in collaboration with nurses working in the community.

 

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Good Practice

Empowering Professionals to support Young Carers (EPYC)

Thanks to funding provided by the European Commission through the Erasmus+ programme, a group of organisations from Germany, Scotland, Ireland, Italy and Austria are working to find new ways to support young carers.
Outcomes: 
PreventionWellbeingIntegrationHealth inequalitiesCarer awarenessIdentifying carers
I work in: 
Carers servicesEmploymentSocial careEducationCommissioning
I work with: 
Young adult carersYoung carersFamilies
Caring for: 
AdultsOlder adultsYoung peopleChildren
Location: 
Scotland
Date Revised: 
Monday, April 30, 2018 - 13:30
Body: 

About the Empowering Professionals to support Young Carers (EPYC) project

Thanks to funding provided by the European Commission through the Erasmus+ programme, a group of organisations from Germany, Scotland, Ireland, Italy and Austria are working to find new ways to support young carers.

Each country involved in the EPYC project will develop a new tool, which we hope will help youth professionals - like teachers, social worker or youth workers - to better support young carers.

The tools aim to aid in the identification of young carers, to allow practitioners to assess the situation of young and young adult carers, including measuring the level and impact of the care burden, and to allow practitioners to develop an action plan to address issues adversely affecting young and young adult carers.

We will then trial the tool to see how it can help make Scotland a better place for young and young adult carers to grow up in.

Why is this project happening?

Young and young adult carers carry out, often on a regular basis, significant caring tasks and assume a level of responsibility which would not usually be associated with their age group.

Although research has provided clear evidence that heavy caring responsibilities can result in emotional difficulties, health problems, social exclusion and limited opportunities for social and leisure activities, professional support services are lacking in many EU countries.

Who is involved in the project?

The two year EU funded project started in August 2016  involving a strategic partnership of six European organisations, namely Carers Trust Scotland (UK), Diakonisches Werk Berlin Stadtmitte e.V. (Germany), Care Alliance Ireland (Ireland), Anziani e non solo (Italy), ARC ORK (Austria) and IPS Versari Macrelli (Italy).

The kick off meeting, hosted by the leading partner, Diakonisches Werk Berlin Stadtmitte e.V., was held in Berlin on 12 September 2016.

What can you do now?

Expected EPYC project outcomes

In the course of the project, intermediate expected results include:

  • An increased capacity of organisations to identify young and young adult carers.
  • An increased knowledge of promising or successful experiences and practices from other European countries.
  • An increased awareness of the challenges faced by young and young adult carers in the different local contexts involved directly or indirectly in project activities.

The outcome of the project is the improved expertise in this field and professional stakeholders having the knowledge to develop support services for young and young adult carers and work with relevant sectors to improve support.

If you are interested to know more about the EPYC project  contact:

  • Louise Morgan, Carers Trust Scotland, Young Carers Development Manager Working with the SYCSA. 
  • Paul Traynor, Carers Trust Scotland, Policy and Campaigns Officer (Young and Young Adult Carers). 
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