The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:
- When dementia is diagnosed.
- When the carer takes on an 'active' caring role.
- When the capacity of the person with dementia declines.
- When the carer needs emotional support and/or a break from caring.
- When the person with dementia loses their mobility.
- When the person with dementia has other health problems.
- When the carer has to cope with behavioural problems.
- When the carer's own circumstances change.
- When the person with dementia becomes incontinent.
- When decisions about residential care and end of life care have to be made
We have designed a toolkit around these ten points,the issues carers face at these points and what will make a positive difference. It has been produced to sit alongside A Road Less Rocky and gives guidance to professionals who come in contact with carers. The toolkit is useful for anyone who works with or treats patients with dementia and is therefore likely to come into contact with carers.
A Road Less Rocky – Supporting Carers of People with Dementia complements the Triangle of Care Carers included: A Guide to best Practice for Dementia Care. This document describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia, identifying six key standards required to achieve better collaboration and partnership with carers.
Although the terminology and legislation referred to in this toolkit applies to England the standards and rationale are applicable across the whole of the UK.
Find further information and download the full report A Road Less Rocky – Supporting Carers of People with Dementia (PDF, 962KB).